tag:blogger.com,1999:blog-2328817836912607000.post4733956672444262537..comments2023-10-13T23:26:17.604-07:00Comments on Defying Gravity: Violent Vertigo!Defy Gravityhttp://www.blogger.com/profile/05518385476598963740noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2328817836912607000.post-14542917124974139552011-11-28T00:54:27.829-08:002011-11-28T00:54:27.829-08:00Oh Jenji, just read your post and must admit I lau...Oh Jenji, just read your post and must admit I laughed out loud! A very serious, crappy sensation that spinning is indeed but your astute analysis of the doctor is spot on!!! I am never sure if doctors are condescending enough to assume that we aren't familiar with medical terminology simply because we aren't doctors ourselves (although many of us are probably just about as well-versed in medical jargon as many of them!) or if they just don't know what the hell they are talking about themselves so they opt for a vague diagnosis simply to satisfy the patient. You make a great point about the earplugs. I actively avoid getting water in my ears after a few ear infections as a kid. But the earplugs in the shower definitely couldn't hurt! Mine was the right side as well and so far hasn't returned yet although I admit I haven't slept on my right side at all since it happened for fear of vertigo returning. Thank you so much for sharing your blog with me! I am loving it and can definitely relate! Especially to the post about being called pale and skinny!Defy Gravityhttps://www.blogger.com/profile/05518385476598963740noreply@blogger.comtag:blogger.com,1999:blog-2328817836912607000.post-58442826382131722902011-11-27T18:49:54.820-08:002011-11-27T18:49:54.820-08:00Hiya.
I also have POTS and I too have extraordina...Hiya.<br /><br />I also have POTS and I too have extraordinarily vivid dreams and I can sometimes remember and then slip back into a particular dream months, even years later. <br /><br />I also have had my run-in with vertigo. And you're right: it's not a dizziness where lying flat will help. In fact, lying on my right side in bed is what triggered it for me. It was violently flipping the world upside down and when my head was on the pillow on my right side my eyes would swiffer back and forth too. It felt disgusting and scared the Hell out of me. My doctor looked into my ear and said the right one looked "inflamed" and that he suspected that I had a virus in my ear; something viral, very much like the shingles/zoster virus that lies dormant and then decides to fire up, except this one is on your vestibular runway. I never truly bought that assessment, as so many things go wrong with our CNS, but I thought that perhaps I had gotten some water in my ear, which carried along with it some sort of virus or something therein causing a temporary irritation and/or perhaps a shift in the crystals. By the way, I was tested for benign positional vertigo and Meniere's. All clear. The problem only lasted a couple of days and came back a year or so later for day. Here's what I put together: When I started putting cotton in my ears for showering and washing my hair I never had the problem again. The day after I forgot to put cotton in my ears, it was back. So, for the past couple of years I religiously put cotton in my ears and don't let any water get in them. I haven't had a problem since. Incidentally, my Mother also started having this right around the same time I did, so perhaps it was something viral, then again, perhaps it's genetic issues related to CNS problems.<br /><br />Also, I wrote a blog post meant to make light of the fine doctor's assessment regarding my ear. While I don't generally speak of my illnesses on my blog, I do make an exception now and again. <br /><br />http://jenjiworld.blogspot.com/2009/01/residence.html<br /><br />Oh, and I also struggle with the weight loss issues as well. Here's another relevant post that I think you might appreciate. If I have linked this before I apologize, you know how the ol brain works. <br /><br />http://jenjiworld.blogspot.com/2010/05/double-standard.html<br /><br /><br />jenjijenjihttps://www.blogger.com/profile/05776962738288748721noreply@blogger.comtag:blogger.com,1999:blog-2328817836912607000.post-51743975069301981542011-11-15T16:17:41.061-08:002011-11-15T16:17:41.061-08:00It actually is somewhat comforting to know I'm...It actually is somewhat comforting to know I'm not the only one this happens to! Although i'm sorry you had to experience this as well! The last couple nights I have been kind of paranoid to go to sleep at night because I am afraid of waking up dizzy again. But it hasn't happened since the other night so I should be fine. I wonder if it could have anything to do with your narcolepsy? The fact that I was having such a crazy dream right before it happened makes me suspicious.Defy Gravityhttps://www.blogger.com/profile/05518385476598963740noreply@blogger.comtag:blogger.com,1999:blog-2328817836912607000.post-80057321307397140152011-11-14T01:17:29.575-08:002011-11-14T01:17:29.575-08:00I have had similar things happen - I really think ...I have had similar things happen - I really think it's related to the nervous system and is thus just another crazy aspect of dysautonomia, if that is any comfort to you! Usually I have these dreams where I am just uncontrollably spinning and can't get up - well, not really a dream, kind of a half awake thing. I'm actually not sure if it's real or not because I always imagine myself trying to get up and to my phone for help but never actually do. The worst was when I woke up and was spinning like crazy, it sounds exactly as what you described, and also could not see right. I had these zig zag things running through my vision and black and white and fuzz...it was SO odd. That has never happened since, though.C.M.https://www.blogger.com/profile/10324583490527760951noreply@blogger.com