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Sep 5, 2017

September is Chiari Malformation Awareness Month!

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Visit http://csfinfo.org  for more information and a growing body of research on Chiari. Be sure to wear purple to help spread aware...
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Jan 27, 2017

In the middle of difficulty lies...opportunity?

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As I sit quietly awaiting a CT scan of my diseased sinuses wearing a 24-hour holter monitor, a neck brace and a mask over my face to pr...
1 comment:
Mar 9, 2015

Survival Mode

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The past few months I've been stagnating in survival mode due to horrendous, persistent pressure headaches at the base of my head and up...
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Nov 28, 2014

I Am Thankful for The Chronic Illness Community

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Every year on Thanksgiving I take a minute to reflect upon what I am thankful for. I have found hope, solace and support among the chroni...
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The Sara Syndrome

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This presentation by Dr. Rekate really resonated with me. It captures the typical experience of patients suffering from dysautonomia, joint ...
Nov 15, 2014

Ehlers-Danlos Syndrome and Chiari Malformation: What’s the Connection?

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The most common form of Ehlers-Danlos syndrome (EDS type 3) occurs in an estimated 1 in 5,000 people, according to Medline Plus . ...
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Nov 10, 2014

I Need This In My Life!

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This just might be the greatest music video there ever was. Apparently CouchCar.com is a thing, a SoCal thing. Props to Taylor Locke Music f...
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One Lovely Blog Award

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Thanks so much to Mary over at A Body of Hope for nominating me for the One Lovely Blog Award! Here are seven facts about me: 1) I hav...
Oct 18, 2014

I love to hear from you!

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A BIG thank you to Mary over at A Body of Hope  for making this for me! I love to hear from my readers and read your blogs! If you have a bl...
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So True!

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A friend and fellow dysautonomia warrior posted this on her Facebook this morning and it really resonated with me! People in the chronic ill...
1 comment: