Dec 1, 2010

Jello-Legs and Other Strange Sensations

One symptom I never ever experienced before POTS is jello-legs. It is quite possibly the strangest sensation in the world. I'm sure there's probably a more technical term for it, but really jello-legs sums it up accurately. When an episode strikes, my legs go weak and feel like they could give out at any second. For me, a jello-leg attack is usually a sign of low potassium. My chest gets heavy and it's hard to breathe when this happens. The other day I had worked nearly 7 hours and got so absorbed in my work that somehow I had skipped dinner. Never a good idea. I literally collapse when my potassium starts to get low. However, I have successfully avoided the emergency room these last few episodes by downing the V8 at home. It usually does the trick and I feel remarkably better in about twenty minutes.

Another strange symptom I have experienced with POTS is a little black floating speck that seems to hang out in my left eye. It is not there all the time, but often, and it is more noticeable when there is a lot of light. Lately I have been contemplating if this should warrant a visit to the eye doctor. I just hate the thought of wasting my time and money on another possibly unnecessary appointment, but part of me thinks maybe I should just to rule out the possibility of something more serious. Lately I tend to chalk everything up to POTS and ignore potentially serious symptoms. It's easier that way. Self-diagnosis almost always saves a trip to the doctor's office.

I'm not sure if it's just the natural aging process or if this is also related to POTS, but the last year or so I have suffered from dry skin, especially on my legs and arms. Of course, this malady is a minor one considering it's fixable with lotion, it's just that my skin never used to be like this. It troubles me almost as much as the handfuls of hair I seem to lose with each shower. I brought the hair loss up to my primary care doctor before and of course he takes one look at my head of thick curly hair and says that "shedding is completely normal and happens to humans periodically. It's not really a problem unless you can see scalp." But what I want to know is, how long should this shedding period last, when will it cease? Do I have to wait to be able to see scalp before it is actually considered a problem? In my book, by the time that happens it's too late to treat it.

Last on my strange symptom list: I do not have the same voracious appetite I used to. I used to be able to consume ridiculously large amounts of food compared to the diminutive size of my body. Lately though, small meals fill me up, and I don't even snack as much as I used to. This is actually quite alarming. I have had heartburn ever since I was a little kid but this is different. Like I actually don't have much room for food anymore. And I love food. It's one of life's greatest and simplest pleasures.

This week's post was kind of a downer, so I thought a song might perk it up a bit. For some reason when I think of jello-legs I think of this R&B ballad, a throwback to the early '90s. Too bad its just low potassium and not love that makes me weak in the knees...

3 comments:

  1. I brought up the hair thing with my specialist and she said that my general poor health was the most likely culprit. I always have wookie in my shower drain and fill my brush every day. I recall reading somewhere that if you tug on a 1cm wide section of your hair and pull out a few strands that's okay, if you pull out 12 or more in the small section then you should get it checked out as things like pituitary issues can cause hair loss (don't quote me on the figures).

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  2. With the hair thing. I had that problem and still do to a point. Before I was placed on Mestinon 180mg time release, my hair was dry, brittle, and did not grow. It is lack of oxygen to the hair folicals. I have thick hair and some shedding is normal, but not what you are experiencing. Made a true difference. Now instead of pulling hands full a day, I am only doing it every couple of days.
    Also, have you told about a powdered potassium to place in your juice and drink it. It can replenish really quick. I get the jelly legs too.
    The food thing is a pain. Usually you can't eat as much because your insides are swollen or too much gas. I wish I could tell ya there. For weeks I will be anerexic, now making me drink Ensure, but I am a 225 pound 5 foot woman, that can not lose anyweight because she can not eat and pull in the calories needed.

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  3. Interesting Michelle...I tried a little hair pull test at home and got 8 from a small section. Not sure if that means I am on the verge of a serious issue or not. Wookie is a good term for it! I hate seeing wookie everywhere, gives me the creeps!

    Thanks for the info RudeKitiKatt...do you take mestinon to treat orthostatic intolerance? I am not taking any meds at the moment. Also, do you know what brand the powdered potassium is? It would be nice to be able to add that to different juice drinks for more variety, V8 gets old lol. The gut issues seem to be complicated in everyone...I don't know where to start in terms of getting my appetite back to what it used to be. The Ensure should be good for you, at least you are getting some nutrients since you can't get it all through your diet. Hope you feel better soon!

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