Showing posts with label Coping Skills. Show all posts
Showing posts with label Coping Skills. Show all posts

Apr 10, 2012

People Suck Sometimes

Whether it's my able-bodied uncle giving me his idea of a "pep talk" by dispensing trite advice: "you are a smart girl, you can do anything you put your mind to, and you wouldn't want to live life from a chair!" (As if anybody has a choice or really aspires to live their life from a chair in the first place...) Ah, the mind over matter speech. If only it were that simple... If only my mind were able to cure my physical illness...

Or my therapist saying that having to go to the doctor every week is "no kind of life," I have come to realize recently that even seemingly well-intentioned people sure do pass judgment on others a lot. I am probably even guilty of that myself every once in awhile. It's one thing to have a thought pop into your head and keep it to yourself but quite another to impose your potentially offensive point of view onto someone else. Yet I am sure that neither one of these people meant to offend me. Which hearkens back to the same question I have asked myself before: am I just overly-sensitive? Or does everyone just need to take care to be more politically correct when it comes to their interactions with the chronically ill?

My skin cannot get much thicker. I am sensitive by nature but have learned to let a lot of things just "roll off" these past few years that would have previously really upset me. Today's discovery of the Facebook group openly discriminating against the disabled really left me reeling. It is amazing to me how people can get away with hate speech like that at this time in history. The following cartoon was posted on their group page and I found myself studying it for quite awhile, not able to uncover a single ounce of humor in it:



I certainly do not find it amusing and do not appreciate being given the label "pampered disabled." If the cartoonist's idea of being "pampered" is not making enough to live on, not being able to travel, not being able to be physically active and not being able to lead normal lives, then call us "pampered." Surely we must be "pampered" by being granted access to basic services through closer parking spaces. Surely that evens the score and levels the playing field among the able-bodied and the disabled. I believe in free speech as much as the next person, but I do not believe in poking fun at or disrespecting people in a public forum, especially the most marginalized groups of society, or "mutants" as a particularly ignorant and mean-spirited member of the Facebook group referred to all disabled people as. It is disgusting to me how sinister and overtly hateful some people can be. Days like today I am even more thankful to have compassionate friends on my side who are genuinely good people. You know who you are.

Dec 17, 2011

Bah Humbug!



The title of this blog post says it all. This year the holidays have been a bit lackluster for me to say the least. Today I definitely reached my boiling point. I have been too busy getting taken advantage of by my employer lately to enjoy much of anything. The reason I work a part time work-from-home job is because that's all I can do health-wise without being able to drive or work a regular predictable schedule. Unfortunately most employers equate working from home with being at their beck and call all hours of the day and night. I have spent a full 30 hours on my contract position this week (I only get paid for 15 hours) making calls because apparently all I am is a glorified telemarketer (+webmaster, +social media guru, +graphic designer, +full-fledged ad agency). All they really want me to do is sell, sell, sell memberships (plus fulfill all of my other roles perfectly each week with only 15 hours to do it in). I am at my wits end. When I obtained this position a few months back part of me wondered if having a stable work-from-home position was too good to be true and that the stability part was some sort of mirage...well turns out it may be. I am not sure how much longer I will last if I don't sell enough memberships. Either I will get fired or I will quit because talking on the phone this much every week has been wreaking havoc on my jaw which I had finally gotten calmed down until a few weeks ago. Now it's back into another painful TMJ flare-up from all the talking I've been doing when I'm supposed to be resting it.

You may be wondering what prompted all my recent telemarketing efforts. My supervisor had a very "serious" conversation with me about the lack of members I've been bringing in and basically gave me a warning that I need to bring in more members or else she will have to step in and do my job for me and collect the pay for it as well (leaving me out of a job completely). The worst part about this serious conversation is that she talked down to me in a very condescending way and I simply took it and said "I understand, I understand," repeatedly instead of standing up for myself and asking her not to speak to me that way all because I am so desperate to have a job for the income it brings in even though this is clearly the wrong job. It is so tough to be focusing every last ounce of energy I can muster up on a job where my efforts aren't even appreciated.

As you may know, my disability application is currently being processed. So I am trying my best to hang on to this job until then otherwise I will have no income whatsoever. So frustrating. Being sick is hard enough. But being sick and having to worry about finances is a predicament many chronically ill people are all too familiar with. I think it's ridiculous that we live in a country where we have to work so hard and wait tirelessly for months if not years to "prove" our rare, chronic and debilitating illnesses to the government so that they can dole out a a small stipend that enables the disabled to live below the poverty level and have to scrounge for every dime while they spend billions on wars overseas. The priorities of most politicians are severely skewed in my book.

I am sure this is an incredibly whiny and pathetic blog post for which I apologize. I am sure many of you can relate or know someone who is much worse off. The thing that has been adding insult to injury today is the fact that I did not receive an invitation to my cousin's wedding. The invitations were all sent out last week and I did not receive one. Although my cousin has grown into a beligerent, selfish alcholic in recent years, we still grew up together, and I never realized it until now that he apparently couldn't stand me. Or maybe its that he knows I won't buy him an expensive enough gift for his taste so he didn't bother to send me an invitation. I have always tried to include him in everything, always remembered him on Christmases and birthdays (although he has never remembered mine, or anyone else's for that matter). He shows up to my grandparent's house on Christmas day every year for about twenty minutes simply to collect his gifts without ever thanking anyone or bringing as much as a card to my grandparents who have always gone above and beyond for him his whole life. This is where his selfishness comes into play. Sure, maybe not everyone is generous by nature, but come on. He could do SOMETHING for them, ONCE IN AWHILE. I am not sure why he couldn't spare a couple bucks for a card or a box of candy to show his gratitude to them. He appears ungrateful for all the things our family has done for him. Growing up he had cars and cash thrown at him even though he was somewhat of a juvenile delinquent who dropped out of school. Yet somehow he lucked out and makes more money than anyone in the family although he didn't ever graduate high school. There is simply no excuse for him not to bring a card or candy to our grandparents on Christmas. But he never does. That kid disgusts me. He is 27 years old and should certainly know better by now. The sad thing is, his fiancee isn't much better in the social graces department.

Needless to say I have written them both off for now and trying my best not to take things to heart but it still doesn't change the fact that being snubbed by my own flesh and blood was hurtful and the damage has already been done. I am way too sensitive about things like this and unhealthily internalize my emotions but the truth is I have always felt like an outsider in my own family. At times I feel as if I'm adopted or something because some of my relatives don't treat me like family, especially since getting sick. It should certainly make for an awkward holiday if my cousin and his fiancee decide to show their faces at my grandparents house expecting their gifts like usual. It makes me sick to my stomach. If they show up I will have to go for a walk so I don't say something out of line, (even though they would have it coming!) At the end of the day I suppose I care way too much about what other people think of me and that gives them power over me. It truly is a waste of my energies to be focusing on this right now, I just can't help but have hurt feelings over this though. How much is enough? Times like this I wish I could distance myself from everyone and everything and check into a spa for a week or two...heck, maybe never check out. Find a way to live at a spa. Then my problems would be dissolved. Or at least easier to cope with. Next year my Christmas present to myself is going to be a guilt-free week at a spa.