I called the drug's manufacturer Shire to give them a piece of my mind. As a fairly rational person I understand that the customer service representative I spoke with was not personally responsible for this decision, but nonetheless I was dissatisfied by the way she addressed my complaint. She claimed that my call was the first she had received regarding this decision and admitted that she did not personally know much about this drug. All she knew was that there was nothing wrong with the drug, it was merely a "business decision" on behalf of Shire. I was outraged by the term. She then proceeded to "apologize for the inconvenience." Can you imagine the complete ignorance and audacity of that statement? I had explained to her in fairly simple terms the condition I suffer from, what the drug does, and what will happen to thousands of people if this drug is unavailable to them. And after all that, she considered it a mere "inconvenience," suggesting no other alternatives except to talk with my doctor to see if there is something similar available.
I'm sorry, I try to be patient with incompetent people in customer service positions, I know they are just reading from scripts, but don't they owe the customer a little more compassion? To at least pretend to care? Rather than reducing something serious and life-altering to a mere inconvenience? I urge all of you to flood the manufacturer with phone calls, contact your state senators, Erin Brockovich, and whoever else you can think of that may have enough influence to help override this callous "business decision."
For more information, visit:http://www.healthrelatedinfos.com/midodrine-removed-hypotension-drug-removal-1104/comment-page-1/
To contact Erin Brockovich, visit:http://www.brockovich.com/pharmaceutical.html
To contact your Senator, visit:http://www.senate.gov/general/contact_information/senators_cfm.cfm
Check out Chronically Kyli's video:http://http://www.youtube.com/watch?v=KixUacGfEE0
Special thanks to Lynn Adams for spearheading a Facebook group! Please join!http://http://www.facebook.com/home.php?#!/pages/Join-Lynn-Erin-Brockovich-for-proamatinemidodrine/144679335564964
And another Facebook group to join: