Showing posts with label Dating with POTS. Show all posts
Showing posts with label Dating with POTS. Show all posts

Dec 11, 2013

2013 Year In Review


This year brought a lot of major life changes and new beginnings for me. Mostly positive ones. I moved to a new home in a different location and am now (finally!) comfortably settled in here. I am living within walking distance to a major doctor's office, lab and my physical therapy clinic. I'm also extremely close to groceries, gas and restaurants. The convenience of not having to drive everywhere has simplified my life a great deal. The appointment running has calmed down a bit too with the exception of physical therapy and dentistry that is. The dental work I've had done and am still having done has tried ever fiber of my being this past year. I only have seven more fillings and five more crowns to go before I am completely cavity-free. I have had a grand total of three root canals, one crown and three fillings done this year. The physical, emotional and financial stress of dental work is enough to drive anyone clinically insane. I realize I have to keep plugging away at fixing my teeth to avoid future root canals and extractions, as those are not an option for me.

My physical therapy appointments though tough, are also rewarding. I don't look at physical therapy as just another appointment, I view it as an integral part of my weekly routine. I am already seeing results in the strength department. Luckily I build muscle pretty quickly which is helping to stabilize my ankle along with the rest of my wobbly body. I am lucky to live right next door to such a great physical therapy clinic with a therapist who also happens to suffer from hypermobility and TMJD herself. Doing physical therapy as a teen saved her from having TMJ surgery and that experience was what led her to the field. I feel optimistic about the progress that I am making and feel myself getting a lot stronger each and everyday. I only go twice a week but have an intense home exercise program that I do daily, sometimes in my living room and sometimes at my apartment complex's on-site gym, which is another nice feature of the new place.

The first month after I moved was fraught with major challenges concerning air quality. I had selected and moved into a ground floor unit, but unfortunately the complex was built on a wetland and as soon as the rains started in my apartment reeked of a strong, sickening mold smell. So much for life in a "luxury" apartment. A home humidity monitor I purchased revealed that the internal humidity reached 75% everyday. A normal internal humidity level is between 30-50%. Anything above 60% provides ideal conditions for mold growth. I fought with the complex to let me move to another unit. An option which was totally feasible considering it was brand new construction and only a quarter of the units were occupied. Their corporate management initially denied my request calling the mold smell a "subjective" complaint since they couldn't pinpoint the exact source of the mold. Upon conducting a bit of careful research and calling the city building inspector it turns out that the problem was much larger than bleach or exhaust fans could have ever fixed. In order to remedy the problem, the building would have had to have been torn down completely. Because apartments are technically classified as commercial space (even though residents inhabit them as their homes,) the city allows them to build on concrete slabs without crawl spaces. They didn't allow the concrete slab to cure long enough in the construction process which resulted in a subsequent sponge-like effect on the foundation every time it rained. Every time it rained that damp moldy smell crept up into my home from the concrete floor, through my carpet and into the living space.

I finally moved into a new apartment in the same complex at the beginning of October after enduring a month of hell in a moldy apartment. I am now living on the second floor of an apartment that doesn't smell of anything other than whatever I have been cooking in the kitchen. My sinuses are much better now and I can actually breathe out of my nose in the mornings again. Something I had wondered if I would ever be able to do again. Although sinus surgery may become an inevitability down the road due to a deviated septum and bone spurring, for now I have dodged a major bullet by avoiding surgery. And I am happy to put it off for as long as possible unless it becomes a necessity. My new apartment feels much healthier and I can breathe easy here which is a huge relief.

I am doing decent in the health department at the moment (aside from a nagging, two-week old mystery upper right quadrant and back pain that landed me in the ER for bloodwork, an abdominal ultrasound and a HIDA scan to no avail and is currently being investigated by my primary care doc). My health is something I do not take for granted at all. For the most part my POTS is controlled and doing much better now that I've removed myself from the moldy environment of the other apartment. Earlier this year I had a scary bout with benign positional vertigo that finally subsided after taking a month round of Augmentin antibiotics for my sinuses. It was a scary time for me. Every time I layed on my right side or flat on my back I would get the spins. This continued for a few months with my doctor telling me it was "just some inner ear virus," and an ENT insisting it was benign positional vertigo spurred by spending too much time in a dental chair as I had a scary incident where some heavy duty dental drilling back in the chair spurred a major attack. Whatever it was, it is no longer happening to me now and I am so thankful. I had a follow-up with a new ENT the other day and luckily they were not able to trigger the vertigo in his office. Because of my history with rotational vertigo during dental work though, he wants me to undergo a more sophisticated test called a VNG early next year to measure eye movements during different positions and then conduct a repositioning procedure in the office to resposition any inner ear crystals that may have become dislodged.

In 2014, I still have plenty of work to do. I would like to make more strides in the health and fitness department with an emphasis on healthier eating. I definitely have some work to do in that department. I am fortunate to have a wonderful boyfriend who enjoys cooking for me, the problem is he enjoys cooking tasty comfort foods without worrying about things like nutritional content or calories. Oh well, I can't complain too much. I know how lucky I am to have someone who cares about me and takes good care of me. I am finally in a healthy relationship, one that I don't have to change myself for. Compared to my verbally abusive ex, this experience has been night and day and I am so thankful.

So to sum it all up, this year has brought some health ups and downs, but overall I'm in a good place health-wise. I'm in a good place location-wise after finally moving into a healthy apartment. And I'm in a great place relationship-wise with someone who loves and respects me. Next year I intend to get my body in peak physical condition and hopefully start to renew old hobbies one by one without destroying my body in the process. For now I will have to say no to ballet but may take up pilates and yoga again in the new year.

Sep 17, 2011

Give Your Body A Boost!



I have been drinking Boost for a little over a month now ever since my grandpa persuaded me to try it when I had an upset stomach one day and couldn't manage to choke down any real food. I think I had eaten some bad food one night, vomited and vomited and felt horrible afterwards. Nothing appealed to me after that but I knew I needed to eat and drink the next day to keep my electrolytes stable. My grandpa swears by his Boost High Protein drink so I decided to humor him and give it a try. To my surprise, it was at least somewhat palatable and did give me an almost instant "boost" of energy. Luckily Boost does not contain caffeine or any other crazy stimulant ingredients, just vitamins, minerals and protein. It is, however, derived from milk protein so be careful if you're lactose intolerant.

I don't normally take any vitamins or special supplements but I try to be somewhat conscious of what I eat on a daily basis. That is, I pay attention to the important stuff like getting plenty of salt, potassium and fluid intake. I definitely wouldn't say I eat a perfect diet though. I still eat junky processed foods when I have a craving, but overall I try to get a good variety of different foods in so didn't think my body was really lacking anything in particular. Perhaps that's why I was really surprised by the way my body reacted to Boost. After a few days of drinking it, my resting heart rate was totally normal (60's sitting!) and only jumped to the 90's when I stood up. I realize that that jump still meets the criteria for POTS, however, it is much better than my usual jump into the 120's. I have been drinking one a day religiously for the past month and I am pleased to report that my numbers have been looking much, much better. I don't know why, maybe my body was lacking some essential nutrient contained in Boost, or maybe its pure coincidence and my POTS is finally cooperating for once, but I really have been feeling better most days. I hope this trend continues. I am definitely going to keep drinking Boost, it couldn't hurt. My gut instinct says it is at least partially responsible for the recent improvement in my numbers and how I feel.

Dec 11, 2010

Dancing Alone


Have you ever put up with a less-than-savory situation simply to avoid being alone? Especially to avoid being alone with a chronic illness? Sometimes I look back on my last relationship and have to wonder if I was just plain lonely or if I had simply lost my marbles as a result of POTS. Guess I can blame that toxic relationship on a chronic impairment of blood flow to my brain.

I started my journey with POTS as a single senior in college. After a few months of being sick and still without a diagnosis, I finally gave in and went out with a very persistent guy from work. The first date went fine, and to my surprise temporarily took my mind off my tachycardia for a change. Before I knew it, a couple dates had turned into a relationship. Truth be told I wasn't ever really sure I wanted a relationship or could even handle one on top of being sick. I knew my health wasn't up to par and it was hard for me to have a "normal" life where one can spontaneously go out on exciting dates all the time. But I informed him of my health problems up front and for awhile it didn't seem to be an issue. Well, at least not for him. I would push myself to the brink of exhaustion simply to appear normal.

He knew I couldn't do anything too athletic; although we did play tennis a couple times and he complained when I had to take quick breaks. Not the most patient guy. And dealing with POTS takes patience. Heck, I was proud of myself just for being able to play tennis at all (keep in mind this was during my pre-compression stocking days, so playing tennis together in the heat really was quite a feat). However, we went on this way for quite awhile. Him wanting to do things, pushing me to do more things, and me being pleasantly surprised by how much I was able to do (sometimes). But there were times when pushing myself only made me that much sicker.

I went through a couple periods where my POTS worsened, and during those times he complained more and more, and I felt like more and more of a burden and a hindrance to him. He suffered from untreated attention deficit disorder (his doctor thought possible bi-polar disorder as well) and liked to remain active. He did not like taking the meds because he said they made his heart race. I know the feeling, so I tried to be patient when he abandoned me to play poker on a regular basis. That was his way of staying active, he insisted. After all, "poker is a sport. They show it on ESPN." Really, I think it was more of a way for him to self-medicate than to stay active.

Although I had explained my illness to him in great detail and he listened and asked questions, not to mention he had seen me at my worst several times, he never fully understood it. On numerous occasions he tried to compare his ravaging gambling addiction to my having POTS. Of course, that comparison angered me greatly considering POTS is a physiological problem while gambling is a psychological one. POTS and gambling are like apples and oranges as far as I'm concerned. No actually, more like apples and airplanes. They are so different the two illnesses shouldn't even be compared...yes I do agree with the notion that addiction is an illness, but at least it's one that there is actually tangible treatment available for. I am sure his ridiculous comparison was either a cop-out and a way to justify spending days on end at the casino, or a subliminal cry for help since it suggests that he had lost control of his addiction just as I had lost control of my own body. Either way, his habit contributed to my neglect, my stress load, my worries, and ultimately, the decline of our relationship. The sad thing is, in the end his addiction and his anger problem were what tore us apart. Not my faulty autonomic nervous system like I had once worried. Although my condition was not conducive to living in an unhealthy relationship, someday I believe I could benefit from a healthy one. But for now, I am content to be dancing alone. To get to know myself again and be comfortable without anyone but myself.

For more information on dating with POTS, please check out my friend Shannon's video called 'Dating With A Chronic Illness:' http://www.youtube.com/watch?v=OTJ3x9erVBU