It's EDS Awareness Month!

No, it is NOT erectile dysfunction syndrome awareness month, nor is "EDS" an acronym for that! EDS stands for Ehlers-Danlos Syndrome and May marks a special month of awareness for this life-altering genetic connective tissue disorder which often results in extreme joint hypermobility and frequent dislocations among myriad other symptoms. I did not learn I had this condition until long after my POTS diagnosis. Many people with EDS also suffer from dysautonomia as a secondary condition. My POTS and TMJ are likely both linked to EDS as an underlying cause.

As a former ballet dancer I have always been very flexible. And that was a major attribute growing up. But never realized I had stretchy skin until an orthopedist pointed it out. And more importantly, I never realized that these seemingly harmless traits would predispose me to other serious health issues like POTS. I am very fortunate that my joints seem to be holding up okay so far (knock on wood!) and feel for all the EDS patients who have already had multiple joint replacements at my age or younger. EDS manifests differently in each patient although most of us share those hallmark traits of flexible skin and joints. Some people have very severe cases which can result in disability and even death, and others are plagued by milder cases that don't impose a major impact on daily life.

If you are extremely flexible and suspect you or someone you know may suffer from EDS, please talk to your doctor about it. And consider getting a referral for genetic testing. Diagnosis can lead to more comprehensive, tailored treatment and can help doctors and surgeons determine safer means of treatment. For instance, when I was struck with appendicitis and found myself in an emergency situation, I was able to inform the surgeon and anesthesiologist of my EDS before surgery. They took extra special care of me because of my EDS diagnosis, paying careful attention to the position of my jaw during surgery, as it is prone to dislocations. Knowledge is power. Take ownership of your health to help your healthcare team provide you with the best care possible!

Zebra FaceCaddy Giveaway for EDS Awareness Month!

I am thrilled to introduce this product to my fellow zebras and readers everywhere! I don't endorse products on my blog unless I feel very strongly about them. The FaceCaddy is one of those life-changing products that I can confidently recommend without reservation. It's a safe, med-free, non-invasive and affordable remedy for many different ailments including TMJ pain, migraines, sinus headaches and even hot flashes! Every EDS patient should have one of these on standby in the medicine cabinet.

A FaceCaddy user myself, I can attest to the quality and effectiveness of this product. The technology behind the FaceCaddy is simple and time-tested: ice and heat therapy are safe and effective treatment approaches that have been widely used by physical therapists, chiropractors and Md's for years. What makes the FaceCaddy so revolutionary is the fact that it renders hot/cold therapy completely portable and convenient: you no longer have to lay on your side while awkwardly holding a bag of frozen peas against your face for twenty minutes at a time. Instead you simply strap on the lightweight, wearable FaceCaddy and go on about your business while still reaping the benefits of hot/cold therapy which include pain relief, reduced inflammation and muscle relaxation.

As most of you know by now, I have been suffering from TMJD for nearly five years and have tried several different treatment approaches (most are costly, painful and largely ineffective) only to find myself right back to where I'd started from: with ice and heat therapy. Admittedly, when I'm in bad pain, I find it hard to muster up any patience. One of the reasons hot/cold therapy never worked well for me in the past was because I never had the patience to hold the ice or heat up to my head for long enough to relieve pain, reduce swelling or relax muscles.

Now that I wear the FaceCaddy, my impatience no longer poses a threat to the effectiveness of ice/heat therapy. If I'm having a really bad TMJ flare-up I often sleep with the FaceCaddy on. It's comfortable, soft and insulates the hot/cold packs so that they stay cold or warm for a long period of time without having to constantly re-freeze or re-heat them. A major bonus so you can truly relax while wearing it.

In honor of Ehlers-Danlos Syndrome Awareness Month I will be giving away a brand new FaceCaddy in zebra print with neon pink trim courtesy of FaceCaddy creator himself, John Lucas, who generously donated this product to share with my readers and commemorate EDS Awareness Month.

To enter the Zebra FaceCaddy Giveaway, simply:

1) Become a follower of my blog.

2) Post a comment below this post and tell me why you'd like to try a FaceCaddy.

*If you're already a following my blog then please post a comment on this post and any other post of your choice by May 19th, 2012.

To get one more entry in the giveaway contest (your name will go into the hat twice!) please share this post on Facebook.

The deadline to enter this giveaway is Saturday, May 19, 2012.

Good luck! The winner will be drawn from a hat and be announced here on Defying Gravity after May 19th.

In the meantime, the FaceCaddy is available online in four lovely fabrics: zebra, pink, black and paisley. Retailing at $24.99, this is one small investment in your health I promise you won't regret.

FaceCaddy is made by Caddywraps. They also make the BackCaddy which utlizes the same portable hot/cold technology and provides gentle compression (would have worked great after my appendectomy and will no doubt be my next CaddyWraps purchase!) and the EyesCaddy which works wonderfully for migraines and light sensitivity. To purchase any of the CaddyWraps products, visit CaddyWraps.com.