Showing posts with label Holiday Gift Guide. Show all posts
Showing posts with label Holiday Gift Guide. Show all posts

Nov 23, 2013

Shop at Amazon to Support Dysautonomia Research!


Whether you're a big holiday shopper or simply make purchases from Amazon once in a blue moon, please shop through this link to support dysautonomia research. Simply use the Amazon search box on the right of the page to find the item you're looking for before making your purchase.

You can purchase ANYTHING from Amazon and 4-6% of your total purchase will automatically be donated to dysautonomia research without costing you a dime extra. There are no gimmicks here. All you have to do is remember to click through the box on the Dysautonomia International webpage before putting items in your cart.

I am on the Patient Advisory Board at Dysautonomia International, an organization I am proud to be a part of. Dysautonomia International has made funding research their primary objective in hopes of ultimately supporting the discovery of a cure or new and improved treatment options for patients. More research leads to more awareness in the medical community and at large. More research and better physician awareness will also help render dysautonomia more of a household name like lupus or multiple sclerosis instead of an illness that sounds obscure and and foreign to people. Education is key and it often starts with educating doctors and providers in the medical profession so that they can begin to recognize and diagnose dysautonomia, thus leading to more prompt patient treatment and better, more thorough and comprehensive care overall.

Dec 5, 2011

Gift Ideas for POTS/EDS Patients

'Tis the season for consumerism. I don't know about you, but I appreciate useful gifts that help improve my quality of life. Here are a few products I recommend without reservation, either for yourself or someone else who suffers from POTS and/or EDS.

Splurges:

1) Apple MacBook Pro. Powerful enough to do just about anything, with a large, clear screen for entertainment. Portable enough to take to bed with you. The only computer you'll ever need. Mine ran efficiently for nearly 8 years after withstanding four years of overuse and abuse at university. At $2400, it's an investment, but one that is sure not to disappoint.


2) KitchenAid Stand Mixer. The gold standard in baking equipment. Save your energy (and your joints) while baking with this lovely, durable mixer. Another investment for the long haul at $250 but I promise you'll get your money's worth out of it.


3) Ugg boots. Yes some may argue that Uggs are ugly. In fact I used to think so myself. But that was before I owned a pair! I have had mine for 6 years now and they are without a doubt the comfiest, warmest footwear I own. My feet are chronically cold, but not in my uggs. And they have really gotten a tad more stylish over the years as well. Price varies.


4) Recumbent Stationary Bicycle. Although I am not thrilled with the brand I purchased, my neighbor has a pricier model in a different brand, XTerra which I love. It is much sturdier with a much smoother ride, the Rolls Royce of recumbent bikes. She purchased it at Costco for just under $800. The convenience of having one at home means I am more apt to ride it and can't use the 'I don't feel like going to the gym' excuse.


5) A Tempurpedic Mattress. Perhaps the single best investment a POTS/EDS patient can make to improve their quality of life. Do not purchase a new mattress impulsively though. Make sure you take the time to do your research and test different models out before committing to one. A comfy mattress can make a world of difference in alleviating aches and pains and helping you achieve more restful, restorative sleep. Something we could all use a bit more of! Price varies.


Steals:

1) Hot Water Bottle $10


2) Homedics Mini Massager $10


3) Omni Mini Massage Roller $10


4) Omron Heart Rate Monitor $35


5) Plantronics Cordless Phone Headset $10